You really have to wonder if these people are in real life or what. Have they just not read the science? Are they paid to lie? Do they just like to troll people? Deeply in denial? Maybe all of the above.
When you read comments like the one below by CLCA, it’s pretty obvious they have serious issues regarding reality. Or they just want to convince people that they have a reality that is actually, well, real.
CLCA quote: “The CDC-recommended guidelines are not outdated. The evidence against long term antibiotics treatment has only grown stronger in the last decade. The National Guidelines Clearinghouse does not endorse guidelines and there is no requirement that the guidelines be scientific, only that they meet certain formal requirements. A group of quacks called ILADS has submitted pseudoscientific guidelines to that web site, but they admit right in the guidelines that each recommendation is based on “very low-quality evidence”. Doctors should be wary of any treatment recommendation based on “very low-quality evidence”.”
Citation needed infinity.
One thing I think CLCA doesn’t understand is that there are many poor quality studies in Lyme disease. This is caused by the complexity of the organism AND the fact that so many of the original researchers did not do a good job on the research. The IDSA out-of-date guidelines based over half of their recommendations on expert opinion (level III evidence). Which is poor quality evidence. But they don’t like to really talk about that. ILADS spells out the fact instead of trying to hide it. The IDSA probably doesn’t want people to know it, though, because they are the ones who did a lot of the crappy research. The IDSA doesn’t only do this with the Lyme guidelines though. From 30 published guidelines by the IDSA, it was found that more than half of the recommendations were based soley on expert opinion.
But facts and stuff don’t fit the “crazoversy.”
You can call ILADS a group of quacks, and if a person reading that knows absolutely nothing about ILADS or who they are, they may actually believe it. However, when you go and fact-check these statements, you find what utter nonesense they are. I call these types of trolls/paid disinformationers idjits because it’s faster to write, but basically it is anyone who has either no clue about the science of Lyme, or they are liars. I have no idea of their motives because people like that really baffle me. It could be any of the reasons above or a plethora of other things. One never knows.
All of them, to me, are quite creepy.
I’m not just saying that as an insult. Think about it. In real, not internet, life –how absolutley strange would it be for someone to have such an issue with people who have a certain illness that they create a persona and argue about it, all while either being completely obtuse about it (on purpose) or being completely uneducated about the facts of this thing they are so obsessed with?
One can take almost anything idjits say and show exactly and positively how factually wrong it is. They either are in such denial or ignorant or are lying in the first place — so what’s the point? Anyone who knows the least bit about Lyme and how the organism works, has been following the latest research, can tell how totally ridiculous they sound.
Those who actually know better and are lying (for whatever reason) seem to be behind a bit though. There is a point where even the CDC, IDSA, and other experts who have been denying persistence have to jump on board the reality train because otherwise they will miss out. They know they can’t deny or hide much longer–the science has caught up in a way they can’t confuse the gullible anymore.
This is one reason is why I believe Paul Auwaerter was involved in the study that shows how persistence of borrelia works in mice and how to treat it. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4373819/ We know he didn’t jump on that research vein because he believed persistence wasn’t a thing. Can you imagine someone TRULY 100% believing there was no persistence in Borrelia then deciding to join a research team to study not only persistence but HOW TO TREAT IT? Come on.
He knew persistence was real, and he knew it for years. But he couldn’t admit it. Now he can AND try to save face at the same time–by being one of the people to “discover” it. (Even though LLMDs have known for years combo and pulse therapy work).
Unlike the way Bobby uses the phrase in Supernatural, “idjits” is not a term of endearment on my part regarding these people. It’s yet another way I laugh at them.
There is a part of me that feels sorry for their kids or other loved ones who might be caught in the karma (or ignorance) crossfire that will be coming. Hopefully, any innocents will take them with the grain of salt the rest of us do.