Fight The Fairy Tales!  

Spoiler warning. If you don’t want to know some Benedict-Sherlock details, don’t read this post. If you are as good at deduction as Sherlock, read it, just don’t read the parts that will spoil it for you. I’m sure you can figure out which parts they are.
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Fairy tales.  

Everyone loves them, right? Of course. Hero versus evil. Hero wins, evil doesn’t. Except when it has the power to tell the story and puts in its own version of the “facts.”  

You know, sort of like North Korea. 

 But it’s pretty easy to fool those who were pretty much brainwashed from birth. One would like to think those in the good old US of A are better, smarter, than that, right?  

Unfortunately, it seems more and more these days many are just not.  

So I like to escape into my own version of fairy tales, where the smart people win, even though people think they are sort of a weirdo. I can relate, as can many Lyme/TBD patients, right? This is why I love Sherlock. The Benedict-Sherlock to be specific. 

  

  
**tangent*  I am sure some are thinking “Hey Shan.  You titled this post with a Supernatural reference– why the Sherlock? ”  Wel, because it just fits so well together.  And don’t Supernatural fans usually try to find their way into every topic?  Just doing my part.  (I do have a great Supernatural post by the way called “Supernatural Bug, Supernatural Ignorance”).  */tangent

I’m not sure how many have read one of my favorite posts– “Critique of ‘No You Do Not Have Chronic Lyme Disease.'”  As I have said before when writing critiques of what others wrote in seemingly health or science articles–I really cannot truly tell if these authors are fooled or not. Who could actually write something they know is false and may hurt a bunch of people but it makes them LOOK LIKE a hero. I don’t know. Maybe some people can live with that. 

It is easier to believe the worst in people when you have experienced how far people will go. Imagine those at the very top of this mountain of lies that has become Lyme. Those who actually do the science and/or medicine for a living, not just semi-experts (if even that) writing about it. Those who do actually know the truth and have lied about it for years, all the while knowing they were, not may, WERE going to hurt thousands of people. And went ahead with it.  

I don’t even think they could say this was in the name of science that they did it either. It’s not like the animal lover rationalizing doing tests on cute little mice or monkeys: It’s for the greater good. That’s not a line Steere or Wormser or Dattwyler could ever utter with any believability. They did it for money.  

The scariest thing is I think they are actually just fine with it.  

But in the fairy tale they have told, and so many have fallen for, THEY are the hero. And patients, their doctors, and Lyme advocates, are the bad guy.  

So back to my other post I mentioned–The one with a gif of bad guy James Moriarty (the ever awesome Andrew Scott). I equated those who are prosecuting doctors –while using the crap-filled IDSA guidelines to do it –with Moriarty. Go back and read it if you want; I’ll wait. 

Any fan of the Benedict Sherlock will remember the episode where Moriarty talks about fairy tales. It is pointed out in this episode that people believe a lot of what is in the media, even if it is not true. It is especially easy to fool them if: 

1. They want to believe it.

2. You give them a bit of truth with it.  
So what do people WANT to believe? 

First of all, that the CDC and/or the IDSA has their back. Some new disease comes along, they have a vaccine. We’re saved!  

But what about the fact the IDSA and researchers were saying that Lyme was hard to catch and easy to cure? Who needs a vaccine for that sort of disease? 

Secondly, supposed crazy anti-vax people had it pulled off the market. People like to believe others are stupid; it makes them feel better about themselves. It also gives them another outlet for whatever they are really angry about at the moment.  

The classic fairy tale, right?  Hero, bad guy.  
But sometimes it is pretty hard to tell which is which. To get to the truth, we don’t need a big sword or magic potion. We only need some common sense.  

Who is predominantly saying Lyme is hard to catch and easy to treat, the vaccine is great!? The IDSA and CDC, some doctors you hear about in articles and probably even at your local medical center. The supposed experts, right?  

Who is predominantly saying Lyme is easy to catch and very hard to treat many times, leaving people sick and unable to get treatment? The patients. Billed not as experts on a disease they are first-hand experiencing (even those who are doctors themselves) but as gullible nitwits who are fooled by lying scamming LLMDs.  

It is more palatable to believe the experts are telling the truth and that these so-called patients are crazy. Because if you can’t believe the experts anymore–well that’s quite a scary thing, right? Who would be left to believe? 

So many people like to believe this fairy tale. It’s safe. And believable-ish on its outside. 

What makes this fairy tale go up in smoke? More and more people saying the hero is lying. You just can’t have that many crazy people. So people start to see the fairy tale for what it really is. A FAIRY TALE.  

The more we, as patients, talk about our experiences, the stronger we become. Do whatever you can to tell your story. Anyone who does is a hero in my book.  

  
 
–Loon Out 

“Yoooou Dirty Raaat!”

Doing my usual searches for Lyme news, I came across this on a website.  Someone had asked what in the world could they have meant by this :

“…tissues of both shame- and antibiotic-treated mice in the absence of histopathology …”

She asked what sort of shaming one would do to mice?  Were they “…telling the mouse to get up out of bed you aren’t really ill?”  

Struck me funny, that line.  

And of course I had to take a screen capture of the incorrect article abstract for future giggling.  It’s in the last sentence of the abstract.  

They, of course, meant “sham-treated” mice. 

I understand too well about typos, but I do love when they make me laugh like this one did.  

  
I’m easily amused these days.  

–Loon Out 

Meetings!

I will now be able to offer weekly meetings.  The best way to do this, I found, is set day, set time.  Come if you can.  They will be Sundays at noon.  To sign up, please email me or comment on my Facebook page by Saturday around noon at the latest so I can plan.  If there is just 1 person coming, I will still have the meetings.  

Those in the area who cannot make it due to transportation, physical limitations, or weather issues and want to join us, please still contact me.  I may be able to work with you to find an online option so you can attend as long as you have a computer/internet.  This will be on a case-by-case basis.  

Please note I do not offer medical advice professionally, of course.  I will never sell any products to treat diseases nor diagnose anyone.  This is simply a chance to get together and talk about the issues people face with tick-borne diseases and to come and learn more about them.  

Hope to see you soon!  
— Loon Out