Many of the articles I read about Lyme Disease, usually those who agree with the IDSA view of Lyme, equate Lyme advocates with people who do not believe in vaccines. That is sort of like saying breast cancer advocates are anti-lumpectomy. Guidelines before the big push by advocates used to say modified radical mastectomy was the way to go. It gave the patient really no choice. Like it or lump it. No pun intended. Now patients have a choice and can have treatment tailored to their specific disease.
Lyme advocates want the same thing. So crazy, right?
The simple truth is that Lyme advocates are Lyme advocates. Period. (In case you missed the small little dot after the first sentence).
Most of us, however, ARE anti-Lymerix. This was the first Lyme vaccine for people. Those “reporters” who are too good for actual research read the one little blurb from all the other articles by reporters who didn’t do their job either and “report” that Lymerix was taken off the market because of stupid Lyme advocates and their paranoid delusions.
Kind of like this guy Click here for an example of bad research or anti-Lyme advocate agenda. Guess what? There is also a picture of Dr. Steere on that “article” as well. We’ll get back to him another day.
That is far from the truth. Lyme advocates did help get it off the market. We did not do it alone.
The IDSA’s stated agenda (obtained by the FOIA) was to wage a psychological war since they could (obviously) not win on fact alone.
From Mary Beth Pfeiffer’s award-winning series of articles on Lyme in the Poughkeepsie Journal:
There is plenty of fact to go against Lymerix that anyone who can spell can find evidence–not speculation–evidence that not only was Lymerix a bad thing, the researchers knew it was a bad thing. (See below about the Supernatural example in how vaccines work; something the researchers, CDC, anyone who knew anything about Lyme and vaccines knew). The CDC knew it was a bad thing, but still it got on the market. The FDA knew it was bad probably before, but definitely after it was hurting people, and let it go on in what seems to be a sort of experiment (yikes). Why? I am, as I have to state way too much, not going to guess what their motivations were.
The above linked article whines about how dogs can get vaccinated against Lyme but people can’t (and blame Lyme advocates for that fact). They should be thanking us.
There is a huge difference between dogs and people. I am sure both sides can agree on that. There is also a huge difference between dog Lyme disease and people Lyme disease. Heck, there is a huge difference between my Lyme disease and my daughter’s Lyme disease, even though we were probably bit in the same area of the town we live in. Our immune systems are so complex. I am 24 years older than she is. I have been exposed to things she hasn’t. Maybe my immune system was working better that day. Our genes are not the same, though similar. So many things shape our disease.
One other aspect I will actually make into another post is the fact that vets know that dogs do not lie. They can’t even talk, right? So if they are having trouble walking, they are going to believe the dog 100%. Not true with the human patient. Dr. House famously said Everybody Lies. Some doctors take this too far, though. You know what Dr. House would say if he was a vet? “Every dog lies by omission.'” That would be true enough.
But like I said, different blog post that will also expand on the fact that many doctors readily believe men over women (they think we over state our symptoms and we’re a bunch of babies). No offense to babies.
Normal vaccines work by taking a surface protein of the disease you want to fight, multiplying it through molecular tech, then inject into humans. The human’s immune system then generates antibodies against this protein. If the microbe later attacks, these now existing antibodies latch on the surface of it and wipe it out.
Lyme disease (Bb) is different. Its surface proteins know how change to run away from such silly things. Dr. Elizabeth Maloney explains it as the disease changing coats. Like a disguise.
For our Supernatural Fans out there, imagine you give Sam and Dean a salt gun and a ghost attacks. BLAM! ghost gone.
Now imagine they are in the episode Hell House. The bad guy keeps changing (although it doesn’t know it is doing it, making it different from big old bad Bb).
So what researchers did is something a bit different (because they know it changes its looks and can’t be beaten by a regular vaccine). They took a protein called OspA and figured they could have the tick suck the antibodies up, thus, the antibodies would kill any Bb in the tick’s gut. The problem? OspA they found caused problems. So they fiddled with research (and actually fiddled so much they made an entire mouse study meaningless) and got it passed.
From one of many questions LDA asked the FDA about Lymerix. (Glaxo was the manufacturer of Lymerix).
Further, what are the implications of GlaxoSmithKline’s presentation at the January 31, 2001 Advisory Committee Meeting of a study on mice which it claimed disproved any auto-immune arthritic risk, without revealing the fact, until questioned, that the mice used in their study lacked the cross-reactive epitope, and therefore rendering the study, as one member of the committee stated, “irrelevant”?
One big fact many other “reporters” miss– The FDA would have made the company take the vaccine Lymerix off the market if they didn’t do it willingly. So in the end, the FDA/Glaxo were the ones who removed it at that time.
Bb is smart. It knows to disguise itself to hide from the immune system (as well as antibiotics). Some species have even been found to have a sump-pump which basically ejects antibiotics to help it survive.
I would definitely love to see an episode of Supernatural where they take on this sucker. The even worse enemy right now, unfortunately, are those who wish to make money off of suffering by blaming those who are sick and those who perpetuate this by laziness (or other unclear agendas) like the linked-to “article” about the “evil Lyme Advocates.”
Quick note: Bloggers are bad enough, but did you know the IDSA guideline writers actually put out an opinion piece in a medical journal saying that Lyme advocates were actually a threat to public safety? HA! You didn’t know I had super powers did ya?
If you make money by actually giving us a good product–that is great.
But if it just smoke and mirrors; well, you better watch out. I do, after all, have Castiel’s number.
I couldn’t resist. This picture is just too much. (I hope that is the correct credit on the picture).